Byrds Fore a Cure Golf Classic
Join us Saturday, April 26, 2014
for the Byrds Fore A Cure Golf Classic
at the picturesque Prescott Golf & Country Club
Click here to register.
Located just 45 minutes from north Phoenix, Prescott Golf & Country Club's
lush fairways, fast greens, scenic views and friendly staff await you! With an average end-of-April high temperature of 75 degrees and a sunset expected at 7:10pm, there isn't a better place to spend that day than with us at the Prescott Golf & Country Club
1030 N Prescott Country Club Blvd
Proceeds from this Byrds Fore A Cure four-person scramble benefit the Arizona Chapter of Families of SMA (FSMA), a nationwide 501(c)(3) charitable organization comprised of families affected by Spinal Muscular Atrophy. SMA is an inherited neuromuscular disease primarily affecting newborns and young children. Kyle & Lauren Byrd are six-year old twins in the Phoenix area who were diagnosed with SMA when they were sixteen months old. Since 2009 the Byrd family has actively fund raised for the Arizona Chapter of Families of SMA and are committed to helping fund research resulting in a cure for SMA. They firmly believe that no parent should outlive his or her child. Although an eventual cure for SMA will likely not save their own children, they will do whatever it takes to help find a cure so that no other parent or child will be faced with such an agonizing diagnosis.
- 50% of children diagnosed with SMA do not survive beyond their 2nd birthday
- 1 in 40 adults are carriers of SMA. Most do not know it.
- Most families of a newly diagnosed child have never heard of SMA and have no known family history of this genetic disease.
- Children with SMA experience varying degrees of muscle weakness, usually requiring the assistance of an electric wheelchair at a very young age. These children tend to be very bright and social, excelling in academics and loved and accepted by their peers.
- People with SMA experience overall muscle weakness which results in varying degrees of lung function. Newborns sometimes require immediate respiratory intervention and have the shortest prognosis among children with SMA. Older children may breathe unassisted, but still require expensive interventions when affected by environmental allergies or cold/flu.
- Awareness of SMA is our ultimate goal. Raising money to fund a cure and/or a treatment for SMA is also critical. Families of SMA was founded 25 years ago and has funded over $55 million dollars for research and development of potential cures of and treatments for SMA. Seventy cents of every dollar raised for Families of SMA goes toward that end.
Families of SMA has chapters is 31 states, and is sustained by local fundraisers organized by families of these medically fragile children. See fsma.org or byrdsforacure.org for more information.
Sponsorship packages are available. Click here for more information.
With such a worthy cause in mind, join us for an amazing afternoon hooking and slicing and using up mulligans in the beautiful Bradshaw Mountains near Prescott, Arizona
. Dinner is included in the price of golf, but additional dinner-only tickets are available too.
- Golf + dinner buffet for one - $85
- Golf + dinner buffet for four - $300
- Dinner ticket only - $20
Your tournament fee includes golf, cart, range balls, drink ticket, raffle ticket, and Mexican buffet dinner.
Mulligans and additional raffle tickets may be purchased when you check in at the registration table.
Tournament format is 4-man scramble
. Shotgun start at 1:30pm on Saturday, April 26, 2014
. See cart flyer for rules.
Click here to register.
Families of SMA
We found out that our one year old twins have Spinal Muscular Atrophy (SMA) in 2008. We had never heard of this disease and had no family history of it, but we've learned first hand that this is a disease that takes its toll, both physically and emotionally. SMA has taken our children's ability to move freely, to run and play the way kids are supposed to, to cough, and even to chew and swallow. It's robbed us of the certainty of seeing all of our beautiful children grow up. This isn't the way life should be, and that's why Families of SMA is so important to us.
Today, it's not just about making it through. It's about beating this disease. Families of SMA is at the forefront of breakthroughs, in research and care, that strengthen our children's bodies and vastly improve their quality of life. They're fighting every day for the treatment and cure kids like Kyle and Lauren need to experience life at its fullest--and each day they are getting closer to making sure that more children don't face the death sentence implied with a diagnosis of SMA in the future.
Families of SMA connected us with a community of families like ours whose children might not live to see their sixth birthdays, but who carry on no matter what. Now we join hundreds of other families committed to funding a cure and treatment for SMA, and we do it by holding events like our Byrds Fore A Cure golf tournament and with support and donations from our friends, family, and communities. We need your support to reach the major breakthroughs that we're closer to reaching than ever before.
Fifteen new drugs are now in development for SMA, with four in active clinical trials. Families of SMA has funded two-thirds of the programs in the SMA drug pipeline over the last thirty years. We've made it this far with everyone's help, and now we need your continued support to sustain the momentum. Funds and donations received from the Byrds Fore a Cure golf tournament go right to Families of SMA to give them--and families like ours--the energy to keep fighting this disease on every front during a crucial moment.
We can't thank you enough for your support!
The Byrd Family